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IN CASE OF MEDICAL EMERGENCY

If your child experiences a Medical Emergency, the first and most important thing to is to call 911. Then take your PWS Medical Handbook with you to the ER so that Emergency Personnel can have the best information to treat your child. If you don't already have a copy of Medical Handbook, you can download by clicking the icon below.

Medical A-Z information is available online from the PWSA, simply click the button below

PWSA has staff that can advise you during medical or phychological crisis 24/7. Call 1-800-926-4797

Here is an interactive link for resources nationwide and how they rank:

https://rareaction.org/resources-for-advocates/state-profiles/

You can also download the PDF document below to see how the rankings were obtained and a how-to guide for the link above.

And of course you can find endless resources at the National Prader-Willi Association website

© 2026 by pwsa-or-wa.org

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